MPTF
MPTF
Your donations change lives
Here are some ways you can support
Find a Lifeline for Nora
$10.00 - $5,000.00At just 7, Nora's vibrant spirit shines despite her battle with the devastating ECHS1 Deficiency, Leigh-like Syndrome. Her adorable joy is inspiring yet makes her parent's search for therapies more urgent. Already Noa has her vision impaired, is tube-fed, and is unable to walk or talk. Yet, their warrior princess finds so much joy in music, cartoons, and her loving family, including Lulu, her loyal pup. The heartache of losing Anna, her sister, further drives the search for a custom therapy that will give Nora, and others like her, the chance to more fully embrace life.View more details...SelectQuantity
Cover A Patient's Personalised Drug Combination
$13,768.00Cover the costs of the full genetic and AI drug combination discovery process including backup combination discovery.QuantityBe Part of a Patient Journey
$100.00 - $2,000.00Be part of funding a patient through the initial sequencing.SelectQuantityPatient Stories
Inspiring heroes
Patient Story
Hi, I'm Lila!
I am a loving 9-year-old who enjoys life with an infectious smile! Even though my diagnosis has been a tough journey, my family, doctors, nurses, teachers, and friends say I change the worldview of nearly everyone I meet. To know me is to love me.
I may not be able to walk, talk, ride roller coasters, or eat pizza, but I CAN:
- Fill your heart with love
- Make my parents so very proud
- Cheer on my brother (and laugh when he gets in trouble)
- Listen to my favorite books
- Snuggle my puppy
- Talk with my eye gazer
- Lead a family walk in my chair
- Rock a tutu!
- Sing along with the latest Taylor Swift songs
- Smile bigger than the sun
With your generous support, imagine what I may be able to do next!
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